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About The RareVerse


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The RareVerse is an idea built upon the growing popularity of the Metaverse, Web3 and Blockchain decentralized data sharing technologies.

These technologies will create opportunities for Rare Disease patients, which we term The RareVerse. They include:

  • Freedom from physical limits through an immersive experience

  • Controlling valuable digital patient data

  • Decentralized governance putting control in the patient’s hands – reducing data silos

  • Building and living in The Metaverse’s digital spaces

  • Engaging in digital commerce

  • Better communication via digital “presence” far superior to today’s Zoom meetings

The RareVerse Blog will explore these and many other issues impacting the Rare Disease Community

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